Donate nowDiana Children's Community Service launches 20th anniversary appeal

Prior to 1998, specialist children's nurses were only available in hospitals. We were lucky to be selected as one of 10 counties to have Diana nurses, so named after Princess Diana, as the teams were set up as her legacy. Over the past 20 years the team has grown to include physiotherapists, phlebotomists and play specialists to provide holistic care for children with life-limiting and life-threatening illnesses (including end of life care) in their homes and community settings. The team also provide support to the parents and siblings of the poorly child. 

Our 20th anniversary appeal aims to boost the equipment and activities available to support poorly children and their families, keeping them together at home. With your help we can make a real difference to the lives of local people at a really difficult time.

 

Read about how the Diana Team helped Elliott (pictured above) to cope with wearing port-a-cath in his chest, after years of hospital admissions left him anxious and fearful.

Watch this short film about the difference the Diana Team have made to Kaleb and his family. 

What the appeal will buy

When deciding what to include in the appeal, members of the team were asked what would have the greatest impact on the care they provide to local children and their families. They were asked to only select items which are over and above what is possible within NHS budgets:

  • End of life bundles - all the essential items immediately available when a request for end of life care comes into the on-call team.
  • Additional end of life items - fingerprint keepsake items, cooling equipment for after a child has passed away at home, leaflets and resource folders for families. 
  • Days out for children with life-limiting and life-threatening conditions who are receiving respite care from the Diana Team. 
  • Clear Way Cough Assists - to help children with neuromuscular and neuro-disabilities clear their chest when they are unable to themselves, preventing chest infections and hospitalisation.
  • IPads for children's phlebotomy clinics - to distract from the procedure and make blood testing a less stressful experience.
  • Port-a-cath and Hickman line demo dolls - wearing a chest line can be a scary prospect but the demo dolls have proven to help children understand the procedure and equipment which reduces their anxiety. 
  • Memory boxes - for children and their families to create memories to be treasured after the child has passed away. 

 Full details of the appeal wishlist can be found here.

 

What we have raised so far

We were delighted to recently receive a grant of £10,000 from The Bailey Will Trust which will allow us to buy two Clearway machines, iPads for children to use during phlebotomy (blood testing) appointments, trips out for children we are looking after as part of their respite care and for arts and crafts materials for play therapy. 

We had 27 runners brave the torrential rain in the Leicester Marathon on 14 October 2018,  raising an amazing £7,405 between them! Thanks to Pick Everard for sponsoring the running vests, t-shirts and providing the best runners treats tent at the event! If you fancy being one of our half or full marathon runners in 2019 you can find out more about the event here.

If you would like to support the appeal at work, in a group or with friends and family we would love to hear from you. Get inspiration here.

 

Your donation, no matter what size, can help improve the lives of poorly children in Leicester, Leicestershire and Rutland. From the children, their families and from all the Diana Children’s Team at Leicestershire Partnership Trust, thank you.

Donate now